الفهرس 
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Abstract
Background: Thalassemic children are highly susceptible to physical, psychological, environmental, and social challenges. Families play an important role in caring for them. Aim: To assess family management and its relation to health-related quality of life among thalassemic children. Research design: A descriptive research design was used to fulfill the aim of the study. Sample: A purposive sample included 103 of families with thalassemic children. Data Collection Tools: included two tools Tool (I): A structured interviewing questionnaire includes two parts. Part 1: Demographic characteristics: A: Background information of parent. B: Background information of the child. Part 2: Family Management Measure (FaMM). Tool (II): Pediatric Quality of Life Inventory Version 4.0™ parent proxy-report (PedsQL™ 4.0). Setting: This study was performed at a hematology clinic in the Minia Regional Blood Bank. Results: 62.2% of the studied families have a poor level of family management measures toward thalassemic children with Mean of 74.44±12.70 and also 60.2% of the studied families reported that have a poor quality of life for their children with mean of 65.1±10.20. Conclusion: a positive correlation was found between the total family management and the total level quality of life, some sociodemographic characteristic such as residence, education, income and number of family members were associated with family management measures and also with the parents’ perception of their children’s quality of life among families of thalassemic children. Recommendations: health education programs should be given about family management and its relation to health-related quality of life among thalassemic children. Community health nurses should collaborate with other health team members to implement comprehensive educational sessions about endogamy mirage and its significant relation to thalassemic disease.